Pehea e ʻike ai i ka lupus – Apartmentsherlock

ʻO ka systemic lupus erythematosus, i kapa ʻia ʻo SLE a i ʻole lupus, he maʻi maʻi (lōʻihi) e hoʻoulu ai i ka mumū ʻōnaehana e hoʻopilikia ai i nā kino he nui. Ma waho aʻe o ka hoʻopilikia ʻana i ka ʻili a me nā hono, hiki ke hoʻopilikia i nā ʻāpana ʻē aʻe o ke kino e like me nā puʻupaʻa, ka ʻiʻo e pili ana i nā māmā (pleura), naʻau (pericardium), a me ka lolo. Nui nā poʻe maʻi i ʻike i ka luhi, ka pohō kaumaha, a me ke kuni. ʻOkoʻa nā lupus mai ka ʻoluʻolu a i ke koʻikoʻi. ʻO ka hapa nui o ka poʻe maʻi i ka wā e hoʻoikaika ai ka maʻi, a ukali ʻia e nā manawa e noho mālie ai ka maʻi – i kapa ʻia he kala kala. Eia naʻe, nui ke kumu o ka manaʻolana. ʻO ka hoʻomaikaʻi ʻana i ka mālama ʻana ua hoʻomaikaʻi maikaʻi i ka maikaʻi o ke ola o kēia mau maʻi a hoʻonui i ko lākou ola.

He aha ke kumu o Lupus?

I ka wā olakino, mālama ko mākou ʻōnaehana pale i ke kino mai nā maʻi a me nā maʻi maʻi. Me ka lupus, hewa ka ʻōnaehana immune a hoʻouka iā “self”, i nā ʻiʻo ponoʻī o ka mea maʻi, ma kahi kaʻina i kapa ʻia ʻo autoimmunity a i ʻole “nalo o ka hoʻomanawanui ʻana”. I ka lupus i ka wā e hoʻouka ai, hui pū nā lālā āpau o ka ʻōnaehana pale i ka hakakā. Ke alakaʻi nei kēia i ka mumū nui a me ka ikaika. ʻAʻole ʻike ʻia ke kumu o ka lupus, a me ka mea e alakaʻi ai i kāna hōʻike like ʻole. Ua ʻike mākou he nui nā mea e pono ai, ʻo ia hoʻi: ka “kūpono” genetic makeup, nā hōʻike kūlohelohe a me nā ʻano kikoʻī o ke kino. Hiki i ka poʻe me ka lupus ke loaʻa i kahi kaʻina hana ʻino no ka hoʻomaʻemaʻe ʻana i nā sela kahiko a poino mai ke kino, ʻo ia hoʻi ka hāʻawi ʻana i nā mea hoʻoikaika mau i ka ʻōnaehana pale a alakaʻi i ka pane kūlohelohe kūlohelohe. ʻO ka pinepine, hoʻomaka ka lupus i nā wahine ʻōpio i ko lākou mau makahiki hānau, ʻoiai hiki ke hoʻomaka i kekahi manawa i ka wā kamaliʻi (e nānā i ka ʻāpana o Childhood-onset lupus ma lalo). ʻOi aku ka maʻi maʻamau i kekahi mau lāhui, ʻo ka nui o nā ʻeleʻele a me nā poʻe ʻAsia, a ʻoi aku ka ʻino i kēia mau pūʻulu. Ma kahi o 20% o ka poʻe me ka lupus e hoʻomohala i ka maʻi ma ke ʻano he kamaliʻi a ʻōpio paha. Ke hoʻomaka ka lupus i ka wā kamaliʻi, ua kapa ʻia ʻo ia ʻo SLE hoʻomaka kamaliʻi, a i ʻole cSLE. He kakaikahi ka loaʻa ʻana o ka lupus ma mua o 5 mau makahiki.

Pehea e ʻike ʻia ai ʻo Lupus?

He paʻakikī ke ʻike ʻia ʻo Lupus no ka mea he maʻi paʻakikī kēia i loaʻa nā hōʻailona he nui, a hiki ke hele mālie. Ma ke ʻano he poʻe loea i ka ʻike ʻana a me ka mālama ʻana i nā maʻi autoimmune e like me ka lupus, hiki i ka rheumatologists ke hoʻoholo maikaʻi inā he lupus ka mea maʻi a aʻo iā lākou e pili ana i nā koho lapaʻau. Loaʻa pinepine ka poʻe me ka lupus i nā hōʻailona ʻaʻole kikoʻī i ka lupus. ʻO kēia mau mea e pili ana i ke kuni, ka luhi, ke kaumaha o ke kaumaha, ke koko koko a me ka lauoho. Loaʻa paha iā lākou ka ʻeha puʻuwai, ka ʻeha o ka ʻōpū a me ke kahe ʻana o nā manamana lima a me nā manamana wāwae. Hiki i nā wāhine hāpai ke loaʻa ka hāʻule. Hiki ke ʻā ʻo Lupus i ka wā hāpai a hiki ke hoʻopilikia i kona hopena. Aia ka papa inoa o ka American College of Rheumatology i nā hōʻailona a me nā ana ʻē aʻe i hiki i nā kauka ke hoʻohana i alakaʻi e hoʻoholo ai inā he lupus ka mea maʻi me nā hōʻailona.

Nā ʻūhū:
- ʻO ke ʻano o ka pehu ma luna o nā papalina – i kapa ʻia ʻo malar rash
- ʻAla ʻulaʻula me nā ʻāpana poepoe a i ʻole oval i hoʻokiʻekiʻe ʻia – i ʻike ʻia ʻo ka discoid rash
- ʻAhu ma ka ʻili i ʻike ʻia i ka lā
ʻEha waha: nā ʻeha ma ka waha a i ʻole ka ihu e mau ana mai kekahi mau lā a ʻoi aku ma mua o hoʻokahi mahina
Arthritis: ʻoluʻolu a pehu e mau ana no kekahi mau pule i loko o ʻelua a ʻoi aʻe nā hui
ʻO ka mumū a me ka naʻau: ka pehu ʻana o ka ʻiʻo e hoʻopaʻa ana i nā māmā (i kapa ʻia ʻo pleurisy a pleuritis) a i ʻole ka puʻuwai (pericarditis), hiki ke hōʻeha i ka ʻeha o ka umauma ke hanu hohonu.
Pilikia ma ke kīpē: ke koko a i ʻole ka protein i loko o ka mimi, a i ʻole nā hoʻāʻo e hōʻike ana i ka maikaʻi ʻole o ka hana ʻana o ka puʻupaʻa
ʻO ka pilikia neurologic: ka hopu ʻana, ka hahau ʻana a i ʻole psychosis (he pilikia olakino noʻonoʻo)
ʻO nā hoʻāʻo koko kūpono ʻole e like me:
- Helu koko haʻahaʻa: anemia, keʻokeʻo keʻokeʻo haʻahaʻa, a i ʻole platelet haʻahaʻa
- ʻO ka hopena o nā antibodies antinuclear maikaʻi (ANA): hiki i ke kino ke hoʻomaka e hoʻouka iā ia iho i loaʻa i nā maʻi lupus a pau.
- ʻO kekahi mau antibodies ʻino: anti-double-strand DNA (i kapa ʻia he anti-dsDNA), anti-Smith (i kapa ʻia he anti-Sm), a i ʻole antiphospholipid antibodies

Inā kānalua kāu kauka he lupus ma muli o kāu mau hōʻailona, e hana ʻia kahi ʻano o nā hoʻāʻo koko i mea e hōʻoia ai i ka ʻike. ʻO ka hoʻāʻo hōʻike koko koʻikoʻi ʻo ANA. Inā maikaʻi ʻole ʻo ANA, ʻaʻohe ou lupus. Eia naʻe, inā maikaʻi ʻo ANA, loaʻa paha iā ʻoe ka lupus a pono ʻoe i nā hoʻokolohua kikoʻī hou aku. Aia kēia mau ho’āʻo koko i nā antibodies i ka anti-dsDNA a me ka anti-Sm, kahi kikoʻī i ka ʻike o ka lupus. ʻO ka loaʻa ʻana o nā antibodies antiphospholipid e hōʻike ana i ka piʻi ʻana o ka pilikia no kekahi mau pilikia e like me ka hāʻule ʻana a i ʻole nā koko koko. Hiki i nā kauka ke ana i ke kiʻekiʻe o kekahi mau protein hoʻohui (he ʻāpana o ka ʻōnaehana immune) i loko o ke koko, e kōkua i ka ʻike ʻana i ka maʻi a hahai i kona holomua.

Pehea e mālama ʻia ai ʻo Lupus?

ʻAʻohe lāʻau lapaʻau no ka lupus, no ka mea, he maʻi mau ia. ʻO nā pahuhopu lapaʻau ʻo ia ka hoʻopaʻa ʻana i ka ʻōnaehana immune overactive a hoʻoulu i ke kala ʻana a pale i ka pōʻino mau o ke kino. ʻO nā ʻano lāʻau lapaʻau e pono ai e pili i nā hōʻailona. Pono ka mālama ʻana i ka cSLE e nānā pono ʻia e kahi hui rheumatology i mākaukau i ka mālama ʻana i nā keiki me ka lupus. Hiki i ka hui ke hoʻokomo i nā kauka (pediatric rheumatologists a me nā mea lapaʻau ʻē aʻe), nā kahu kahu, nā kauka kōkua, nā kahu hānai, nā limahana hana, nā kākāʻōlelo, a me nā mea lapaʻau kino a / a i ʻole nā hana. E hui pū lākou me ka ʻohana, nā kula a me nā kumuwaiwai ʻē aʻe o ke kaiāulu e hoʻolako i kahi keiki a ʻōpio paha me ka mālama maikaʻi loa no ka mālama ʻana i ke olakino kino a me ke kino. Loaʻa nā koho lapaʻau maʻamau:

ʻO nā lāʻau antimalarial: Hydroxychloroquine (Plaquenil), ʻōlelo ʻia no kēlā me kēia maʻi me ka lupus. Ua hoʻohana ʻia ka Hydroxychloroquine i ka wā ma mua e pale a mālama i ka malaria. Hoʻohana ʻia ia e mālama i ka maʻi o ka lupus pili, ka luhi, nā ʻeha, a me nā ʻeha waha, a me ka pale ʻana i nā lapalapa.
ʻO nā Corticosteroids a me nā mea pale pale pale: ʻO nā maʻi me nā pilikia koʻikoʻi a weliweli paha i ke ola e like me ka ʻāʻī ʻana o ka puʻuwai, ka ʻulaʻula a i ʻole ke komo ʻana o ka puʻuwai, a me nā hōʻailona o ka ʻōnaehana nerve waena e pono ai ka lāʻau hou aʻe. Hiki i kēia ke komo i nā corticosteroids kiʻekiʻe e like me prednisone a me nā lāʻau lapaʻau ʻē aʻe e hoʻopau i ka ʻōnaehana pale. Hoʻokomo ʻia nā mea hoʻopaʻa pale i ka azathioprine (Imuran), mycophenolate mofetil (Cellcept), methotrexate, cyclophosphamide (Cytoxan), a me rituximab (Rituxan). ʻO nā lāʻau lapaʻau ʻē aʻe e kōkua i ka mālama ʻana i ka ʻeha, me nā lāʻau anti-inflammatory nonsteroidal (NSAIDs) e like me ka ibuprofen a i ʻole naproxen.
Loaʻa i nā lāʻau āpau nā hopena ʻaoʻao. No ka laʻana, pili ka prednisone me ka piʻi nui ʻana o ka maʻi, ka loaʻa ʻana o ke kaumaha, nā kiko kiko, ke koko kiʻekiʻe, ka osteoporosis (iwi lahilahi), ke kaumaha, ka glaucoma (ke kiʻekiʻe o ka maka) a me ka cataracts. Eia nō naʻe, ʻo ka prednisone kekahi o nā lāʻau lapaʻau wikiwiki loa a maikaʻi loa e mālama ai i ka lupus ikaika a hoʻomalu i ka mumū e pale ai i ka pōʻino i ke kino. Pono ʻoe e kūkākūkā i nā pono a me nā pilikia o nā lāʻau i ʻōlelo ʻia me kāu kauka. Ma muli o ka pane ʻana i ka lāʻau lapaʻau, hiki i kāu kauka ke hoʻololi i nā lāʻau lapaʻau e hoʻohaʻahaʻa i nā hopena ʻaoʻao ʻoiai ke hoʻomalu nei i ka lupus. He mea nui e kūkākūkā pū me kāu hui lapaʻau i nā pilikia āu e pili ana i kāu mau lāʻau, a i ʻole nā hoʻololi i kāu mau lāʻau āu e noʻonoʻo nei, i mea e mālama pono ai ka lupus.
Biologics: Ma 2011, ua ʻae ka FDA i kahi biologic, belimumab (Benlysta), no ka mālama ʻana i ka SLE ikaika i nā poʻe maʻi makua a ua ʻae ʻia i ka makahiki 2019 no ka hoʻohana ʻana i nā keiki. Ua hōʻike ʻo Benlysta i ka maikaʻi i nā ʻano lupus maʻalahi a ʻo ia ka lāʻau lapaʻau hou mua i ʻae ʻia no ka lupus mai 1955.
I Iulai 2021, ua ʻae ka FDA iā Saphnelo (anifrolumab-fnia) ma ke ʻano he lāʻau lapaʻau ʻelua i manaʻo ʻia e mālama i nā pākeke me ka systemic lupus. Loaʻa ia ma ke ʻano hoʻokahi-no ka lawe pololei ʻana i ka vein.
Ua ʻae ʻia ʻo Voclosporin e ka US Food and Drug Administration (FDA) e mālama i nā pākeke me ka lupus nephritis i Ianuali 2021.

ʻOi aku ka hopena o ke ola kino o ka Lupus

ʻO ka maʻi Lupus, ʻoi aku ka nui o ka wā e hana ai, hiki ke alakaʻi i ka atherosclerosis wikiwiki (ka hoʻopaʻa ʻana i nā ʻaʻa) hiki ke ulu i nā wahine ʻōpio a hiki ke alakaʻi i ka hōʻeha puʻuwai, ka puʻuwai puʻuwai, a me nā hahau. No laila, he mea nui i ka poʻe maʻi me ka lupus, ma waho aʻe o ka hoʻomalu ʻana i ko lākou maʻi, hoʻoikaika kino a hoʻohaʻahaʻa i nā kumu pilikia ʻē aʻe no ka maʻi puʻuwai, e like me ka puhi paka, ke koko kiʻekiʻe, a me ka cholesterol kiʻekiʻe. ʻO ka ʻāʻī ʻana kekahi o nā hōʻike maʻamau a koʻikoʻi loa o ka lupus. Hiki ke ʻike ʻole ʻia a hiki ke alakaʻi i ka hiki ʻole o ka renal a me ka dialysis. Hiki iā ʻoe ke pale i kēia mau hopena koʻikoʻi ma o ka ʻimi ʻana i ka lāʻau lapaʻau ma nā hōʻailona mua o ka maʻi kīkī. Aia kēia mau hōʻailona:

Ke koko kiʻekiʻe
Pehu nā wāwae a me nā lima
Puffiness a puni kou mau maka
Hoʻololi i ka mimi (ke koko a i ʻole ka huʻa i ka mimi, hele pinepine i ka lumi ʻauʻau i ka pō, a i ʻole ʻeha a pilikia paha i ka mimi ʻana)

Noho me Lupus

Hiki i ka hapa nui o ka poʻe me lupus ke ola maʻamau. Ua maikaʻi ka mālama ʻana i ka lupus, a ua lōʻihi ke ola o ka poʻe me ka maʻi. Eia kekahi mau ʻōlelo aʻoaʻo e kōkua iā ʻoe i ka wā e noho ana me ka lupus:

Hoʻokumu i kahi ʻōnaehana kākoʻo. Hiki i ka pilina kauka-ma’i maika’i a me ke kāko’o mai ka ‘ohana a me nā hoaaloha ke kōkua iā ‘oe e ho’okō i kēia ma’i ma’i ma’amau a ‘ike ‘ole.
E komo i kāu mālama. E aʻo e like me kāu e hiki ai e pili ana i ka lupus, kāu mau lāʻau lapaʻau, a me ke ʻano o ka holomua e kali ai. E lawe i kāu mau lāʻau a pau e like me ka ʻōlelo a ke kauka, a e kipa pinepine i kāu kauka rumatika no ka pale ʻana i nā pilikia koʻikoʻi. ʻAe kēia i kāu kauka e mālama i kāu maʻi a hoʻololi i kāu lapaʻau e like me ka mea e pono ai. Inā ʻaʻole ʻoe e noho kokoke ana i kahi rheumatologist, pono paha ʻoe e loaʻa i kāu kauka mālama mua e hoʻokele i kou lupus me ke kōkua o ka rheumatologist.
Noho hana. Kōkua ka hoʻoikaika kino i ka maʻalahi o nā hono a hiki ke pale i ka maʻi puʻuwai a me ka hahau ʻana. ʻAʻole kēia manaʻo e hoʻonui. E hoʻopau i ka hana maʻalahi a me ka haʻahaʻa me nā manawa hoʻomaha.
Hōʻalo i ka ʻike nui ʻana i ka lā. Hiki i ka lā ke ho’āla i ka lupus a e ho’āla paha i ka ma’i nui o ka ma’i. Ke hele i waho i ka lā lā, e ʻaʻahu i nā lole pale (nā lima lima lōʻihi, ka pāpale nui-nui) a hoʻohana i ka nui o ka pale lā.

Inā he wahine ʻōpio ʻoe me ka lupus a makemake ʻoe e hānau pēpē, e hoʻolālā pono i kou hāpai ʻana. Me ke alakaʻi a kāu kauka, e hoʻokaʻawale i kou hāpai ʻana i ka wā haʻahaʻa kāu hana lupus. ʻOiai e hāpai ana, e pale i nā lāʻau lapaʻau e hōʻeha ai i kāu pēpē. ʻO kēia mau mea he cyclophosphamide, cyclosporine a me mycophenolate mofetil. Inā pono ʻoe e lawe i kekahi o kēia mau lāʻau lapaʻau, a i ʻole ʻeleʻele kou maʻi, e hoʻohana i ka mana hānau. No ka ‘ike hou aku, e nana i ka Hapai a me ka Rheumatic Disease. Ua hopohopo lōʻihi ka poʻe Rheumatologists ʻo ka hormone estrogen wahine a i ʻole ka mālama ʻana me ka estrogen ke kumu a hoʻonui paha i ka lupus, a hiki ke hoʻonui i ka pilikia o ke koko koko. No laila, pono ʻoe e hōʻalo i ka estrogen inā hōʻike kāu mau hoʻāʻo koko i ka loaʻa ʻana o nā antibodies antiphospholipid (ʻo ia hoʻi, ua loaʻa iā ʻoe kahi pilikia nui o ke koko koko). ʻO nā keiki me ka cSLE ʻO ka
lohe ʻana he lupus kāu keiki he mea weliweli ia. Eia naʻe, ma ka hoʻomaopopo ʻana i ka maʻi a me ka hana pū ʻana me ka hui mālama ola, hiki iā ʻoe ke aʻo i ka maikaʻi o ka mālama ʻana i kāu keiki.
Aia kekahi mau manawa e hoʻomaha ai nā keiki a me nā ʻōpio me ka lupus mai ke kula e ʻae i ko lākou kino e hoʻōla. A i ʻole, paipai ʻia lākou e ola e like me ke ola maʻamau e like me ka hiki. ʻO ka hele ʻana i ke kula, ka pāʻani me nā hoaaloha, ka hoʻoikaika kino, ka ʻai ʻana i ka meaʻai olakino a me ka hoʻomau ʻana i nā hana ʻohana he mea nui. Nui nā keiki a me nā ʻōpio i nā manaʻo e pili ana i ka lupus a me kona hopena i kona ola. Hiki i kēia mau mea ke komo i ke kaumaha, ke kaumaha, ka hopohopo a me ka huhū. Nui nā mākua, nā kahu hānai a me nā kaikunāne e ʻike i nā pilikia pili i ka manaʻo. He mea nui e hoʻomaopopo i kēia mau manaʻo a hāʻawi i ka manawa e kamaʻilio ai no lākou. He mea nui nō hoʻi ka loaʻa ʻana o ke kōkua ke hoʻopilikia nui ʻia nā pilikia o ka naʻau (e laʻana, ke keʻakeʻa ʻana i nā hana maʻamau). Hiki iā ʻoe ke kamaʻilio me nā lālā o ka hui rheumatology (kauka, kahu kahu, a limahana paha) e kōkua i ka ʻike ʻana i nā kumuwaiwai no ke kākoʻo olakino noʻonoʻo no nā maʻi ʻōpio a me ko lākou ʻohana. Hoʻohou ʻia ʻo Dekemaba 2021 e ke Kōmike ʻAmelika Hui Pū ʻIa o Rheumatology no ka Hoʻokaʻaʻike a me ka Marketing. Hāʻawi ʻia kēia pepa ʻike maʻi no ka hoʻonaʻauao ākea wale nō. Pono nā kānaka e nīnau i kahi mea mālama ola kino kūpono no ka ʻōlelo aʻoaʻo lapaʻau ʻoihana, ʻike a me ka mālama ʻana i kahi maʻi olakino a olakino paha. He mea paʻakikī ka ʻike ʻana i ka lupus. ʻAʻohe hōʻike hoʻokahi e hiki ke hāʻawi i nā kauka i ka pane “ʻae” a i ʻole “ʻaʻole”. I kekahi manawa he mau mahina—a i ʻole mau makahiki—e hōʻiliʻili i nā ʻike kūpono. ʻO ka hana ʻana i kahi maʻi lupus e like me ka hoʻohui ʻana i kahi puzzle. E nānā kāu kauka i nā ʻāpana puzzle like ʻole: kou mau hōʻailona, mōʻaukala olakino, mōʻaukala ʻohana, a me nā hoʻokolohua lab. Inā lawa nā ʻāpana i hui pū ʻia, hiki ke ʻike ʻia ʻoe me ka lupus.

He aha nā nīnau a kaʻu kauka?

Inā manaʻo kāu kauka he lupus paha ʻoe, e nīnau lākou iā ʻoe i nā nīnau e pili ana i kāu mau hōʻailona, e like me:

He aha kāu mau hōʻailona?
ʻEhia mau manawa i loaʻa iā ʻoe kēia mau hōʻailona?
I ka manawa hea i hoʻomaka ai kāu mau hōʻailona?
Hiki i kekahi mea ke hoʻomaikaʻi a maikaʻi paha kāu mau hōʻailona?
Ua mau paha kāu mau hōʻailona a i ʻole hele mai a hele?
E ʻoi aku ka ʻino o kāu mau hōʻailona i kekahi manawa o ka lā?
Ke hele nei kāu mau hōʻailona ma ke ala o kāu hana maʻamau i kēlā me kēia lā?

Hiki paha i kāu kauka ke nīnau inā he lupus kekahi o kou ʻohana a i ʻole kekahi maʻi autoimmune (he maʻi kahi e hoʻouka ai ka ʻōnaehana immune i ke kino olakino). ʻO ia no ka mea hiki i ka poʻe i loaʻa kahi lālā o ka ʻohana me kahi maʻi autoimmune hiki ke ulu i ka lupus.

E hoʻomākaukau no kāu koho

Ma mua o ke kau ʻana o kāu kauka, e lawe i kekahi mau minuke e noʻonoʻo i nā nīnau ma luna. E ho’āʻo e kākau i kāu mau pane a lawe pū me ʻoe i ke keʻena o ke kauka. Hiki iā ʻoe ke hoʻohana i kēia mau kumuwaiwai no ka hoʻomākaukau ʻana no kāu koho:

E aʻo hou e pili ana i nā hōʻailona a me nā hōʻailona o lupus
E lawe i kekahi mau minuke e hoʻopiha i kēia papa inoa hōʻailona
E hahai i kēia mau ʻōlelo aʻoaʻo 6 e hoʻomaikaʻi maikaʻi i kāu koho

He aha nā ʻano hoʻāʻo e hiki ke kōkua i ka ʻike ʻana i ka lupus?

Hiki i kāu kauka ke hāʻawi iā ʻoe i nā hoʻokolohua ʻokoʻa e ʻike ai inā he lupus ʻoe. ʻOiai ʻaʻohe hoʻāʻo hoʻokahi e hiki ke hōʻoia i ka lupus, kōkua nā hoʻokolohua i nā kauka e nānā i nā loli i kou kino – e like me ka mumū – hiki ke kumu i ka lupus.

Nā hoʻāʻo koko

Hiki i nā ho’āʻo koko ke kōkua i nā kauka e ʻike i nā mea e like me ke ʻano o ka hana ʻana o kāu ʻōnaehana pale, a i ʻole he mau hōʻailona o ka mumū i loko o kou kino. Hiki i kāu kauka ke noi iā ʻoe e kiʻi i kēia mau hoʻāʻo koko:

He helu koko holoʻokoʻa (CBC) e ana i nā helu o nā keʻena koko ʻulaʻula, nā keʻokeʻo keʻokeʻo, a me nā platelets (nā ʻāpana e kōkua i ke koko koko) i loko o kou koko
Nā hoʻāʻo antibody e ʻike inā ke hoʻouka nei kāu ʻōnaehana pale i ke kino olakino
E ho’āʻo i ka manawa hoʻopaʻa koko e ʻike inā loaʻa iā ʻoe nā pilikia clotting
Hoʻohui i nā hoʻokolohua e nānā i nā hōʻailona o ka mumū

Nā hoʻāʻo mimi

Hiki i nā ho’āʻo mimi (pee) ke kōkua i nā kauka e ʻike inā he pilikia me kou puʻupaʻa. Hiki i kāu kauka ke hoʻāʻo i kāu mimi i hoʻokahi manawa a i ʻole e hoʻāʻo i nā manawa he nui e nānā i nā loli.

Nā biopsies

Hiki i nā kauka ke wehe i kahi ʻāpana liʻiliʻi o ka ʻiʻo (nā mea i hana ʻia ai kou mau kino) mai nā wahi like ʻole o kou kino, e like me kou ʻili. A laila hiki iā lākou ke nānā i kēlā ʻiʻo e ʻike inā he mau hōʻailona o ka mumū a me ka pōʻino. E aʻo hou e pili ana i nā hoʻokolohua lab no lupus

He aha ka hopena inā loaʻa iaʻu ka maʻi lupus?

Inā loaʻa ʻoe i ka lupus, hiki iā ʻoe ke hana pū me kāu kauka e hana i kahi hoʻolālā lapaʻau. ʻAʻohe lāʻau no ka lupus, akā aia nā ala e noho ai ma luna o kou olakino a mālama i kāu mau hōʻailona. E aʻo e pili ana i nā lāʻau lapaʻau no ka lupus No ka ʻike hou aku e pili ana i ka ʻike ʻana i ka lupus, e kipa i ka National Resource Center ma Lupus. ʻO ke ala o Victoria i ka hōʻailona Ua ʻike ʻo Victoria Gibbs i nā hōʻailona ʻē aʻe no nā mahina ma mua o kona loaʻa ʻana i kahi maʻi maʻi. Ua aʻo ʻo ia ʻo ka loaʻa ʻana o ka lupus ʻaʻole ka hopena o ka honua – he hoʻomaka hou ia E heluhelu i kāna moʻolelo ʻO Lupus kahi maʻi lōʻihi e hoʻoulu ai i ka ʻeha ami, ka ʻili ʻili a me ka luhi. ʻAʻohe lāʻau lapaʻau, akā hiki ke hoʻomaikaʻi nā hōʻailona inā hoʻomaka koke ka lāʻau.

ʻO ka ʻōlelo aʻo wikiwiki ʻole: E ʻike i kahi GP inā loaʻa pinepine ʻoe:

ʻeha a me ka ʻiʻo
ʻO ka luhi nui ʻaʻole e pau ka nui o kou hoʻomaha
ʻūhū – pinepine ma ka ihu a me nā papalina

ʻO kēia nā hōʻailona nui o ka lupus. Loaʻa paha iā ʻoe:

poʻo poʻo
waha eha
kiʻekiʻe wela
lauoho lauoho
ʻoluʻolu i ka māmā (e hoʻoulu ai i ka ʻili i uhi ʻole ʻia)

Mea nui:
Mea nui ʻOi aku ka maikaʻi o ka mālama ʻana iā Lupus inā loaʻa a mālama mua ʻia.

Pehea e ʻike ʻia ai ka lupus

ʻO Lupus, i kapa ʻia hoʻi ʻo systemic lupus erythematosus, ʻaʻole maʻalahi ke ʻike ʻana no ka mea hiki ke like me nā kūlana ʻē aʻe. ʻO nā hōʻailona e pili ana i ka mumū o nā ʻāpana like ʻole o ke kino e like me ke akemāmā, puʻuwai, ate, ami a me nā puʻupaʻa. Hana pinepine ke GP i kekahi mau ho’āʻo koko. ʻO nā pae kiʻekiʻe o kahi ʻano antibody, i hui pū ʻia me nā hōʻailona maʻamau, ʻo ia ka lupus. Hiki ke hāʻawi ʻia iā ʻoe no nā hihi X a me ka nānā ʻana i kou puʻuwai, puʻupaʻa a me nā mea ʻē aʻe inā manaʻo ke kauka e pili ana lākou. Ke ʻike ʻia ka maʻi lupus, e aʻo ʻia ʻoe e loaʻa i nā loiloi maʻamau a me nā hoʻāʻo ʻana, e like me nā hoʻāʻo koko maʻamau e nānā i ka anemia a me nā hoʻāʻo mimi e nānā i nā pilikia kīkī.

Hiki i ka lupus ke ʻano mai ka maʻalahi a i ke koʻikoʻi

Pehea ka hopena o ka lupus i ke kino
ʻinoʻino	Pehea ka hopena o ke kino
ʻoluʻolu	Nā pilikia o ka hui a me ka ʻili, ka luhi
Kaumaha	ʻO ka mumū o nā ʻāpana ʻē aʻe o ka ʻili a me ke kino, e like me kou māmā, naʻau a me nā puʻupaʻa
Koʻikoʻi	ʻO ka ʻāʻī e hōʻeha nui ai i ka puʻuwai, ka māmā, ka lolo a i ʻole nā puʻupaʻa hiki ke hoʻoweliweli i ke ola

Hiki i nā hōʻailona ke ʻā a kū i lalo

Piʻi pinepine ka lupus (hoʻi hou) a ʻoi aku ka ʻino o nā hōʻailona no kekahi mau pule, i kekahi manawa lōʻihi. Hoʻopau nā hōʻailona (kala ʻia). ʻAʻole ʻike ʻia ke kumu i ʻike ʻia ai nā hōʻailona. ʻAʻole ʻike kekahi poʻe i kekahi ʻokoʻa a paʻa mau ko lākou mau hōʻailona.

Lapaʻau no ka lupus

Hoʻohana pinepine ʻia ʻo Lupus me:

nā lāʻau anti-inflammatory e like me ibuprofen
hydroxychloroquine no ka luhi a me ka ʻili a me nā pilikia pili
nā papa steroid, injections and creams for kidney inflammation and rashes

ʻElua mau lāʻau, rituximab a me belimumab, i kekahi manawa e hoʻohana i ka lupus koʻikoʻi. Hana kēia mau mea i ka ʻōnaehana pale e hoʻemi i ka nui o nā antibodies i loko o ke koko. He ʻike hou aku ka Versus Arthritis no nā lāʻau lapaʻau no ka lupus

Noho me lupus: nā mea hiki iā ʻoe ke hana iā ʻoe iho

ʻOiai he mea koʻikoʻi nā lāʻau lapaʻau i ka hoʻomalu ʻana i ka lupus, hiki iā ʻoe ke kōkua i ka mālama ʻana i kāu mau hōʻailona a hōʻemi i ka pilikia o ka ulu ʻana.

Hana

e hoʻohana i ka pale lā kiʻekiʻe (50+) – hiki iā ʻoe ke loaʻa iā ia ma ke kau ʻana inā he lupus ʻoe
e aʻo e hoʻoikaika iā ʻoe iho e pale i ka luhi
e ho’āʻo e hoʻoikaika i ka lā ʻino
e ho’āʻo i nā ʻenehana hoʻomaha no ka mālama ʻana i ke kaumaha – hiki i ke koʻikoʻi ke hoʻonui i nā hōʻailona
e komo i ka papale i ka la
e haʻi i kāu mea hana e pili ana i kou kūlana – hiki iā ʻoe ke hoʻololi i kāu ʻano hana
noi i ke kōkua mai ka ʻohana, nā hoaaloha a me nā ʻoihana olakino
ʻai i ka meaʻai olakino, kaulike, me ka huaʻa D a me ka calcium

Mai

mai puhi – ʻo ka hoʻōki ʻana i ka puhi paka ka mea nui loa e hana inā he lupus ʻoe
mai noho i ka lā pololei a i ʻole e hoʻolōʻihi i ka manawa ma nā lumi me nā kukui fluorescent

Loaʻa iā Lupus UK ke kākoʻo, ka ʻōlelo aʻo a me ka ʻike no ka poʻe me ke ʻano.

Nā kumu o ka lupus

ʻO Lupus kahi maʻi autoimmune. ʻO ia ke ʻano o ka ʻōnaehana pale kūlohelohe o ke kino (immune system) hoʻouka i nā wahi olakino o kou kino. ʻAʻole hiki ke lele. ʻAʻole maopopo i ke kumu o ka lupus. ʻO nā kumu kūpono paha:

maʻi maʻi viral
kekahi mau laau lapaau
lā
wā ʻōpio
hānau hānau
menopause

ʻOi aku ka nui o nā wahine ma mua o nā kāne i ka lupus, a ʻoi aku ka maʻamau o nā wahine ʻeleʻele a me ʻAsia.

Ka hāpai ʻana a me ka lupus

Hiki i ka Lupus ke hoʻopilikia i ka wā hāpai. E ʻike i ke kauka ma mua o ka hoʻāʻo ʻana e hāpai e kūkākūkā i nā pilikia a no laila hiki ke hoʻololi ʻia kāu lāʻau inā pono.

Video: lupus i nā keiki

E nānā i kēia wikiō e ʻike ai i ka hopena o ka lupus (kahi maʻi autoimmune) i nā keiki. Nānā hope ʻia ka Media: 1 Iulai 2021 Pono
ka loiloi Media: 1 Iulai 2024 ʻO ka ʻaoʻao i nānā hope ʻia: 23 Kepakemapa 2020 Manaʻo
ʻia ka loiloi aʻe: 23 Kepakemapa 2023 No ka mea hiki i ka lupus ke hoʻopuka i nā hōʻailona like ʻole i nā kānaka like ʻole, hiki i ke kauka ke hana maoli i ka maʻi. ‘Ōlelo pinepine ke kauka aia paha ka lupus, akā ʻaʻole lawa nā hōʻailona o kēia manawa e hōʻike i kahi hōʻailona paʻa. Ma kēia hanana, e nānā pono ʻo ia i nā hōʻailona o ka mea maʻi, nā hōʻailona, a me nā hoʻāʻo lab i ka manawa a hoʻihoʻi iā ia no nā kipa mau. ʻAʻole loaʻa ka loaʻa ʻana o kahi kanaka i loaʻa iā SLE. Akā, ua noʻonoʻo ka American College of Rheumatology (ACR) i kekahi mau pae hoʻohālikelike, a ʻehā a ʻoi aʻe paha o kēia mau pae hoʻohālike e pono ai no ka hoʻokaʻawale ʻana i ka lupus. [ʻAʻole like ka huaʻōlelo “classification” me “diagnosis.” ʻO ke ʻano o ka “Classification” ʻo ia ka ʻoiaʻiʻo kūpono no ka ʻike ʻana i ka lupus no nā kumu noiʻi. ʻO nā pae hoʻohālike ACR e komo pū me ka malar malar; ʻūhū discoid; photosensitivity (ka hoʻomohala ʻana o kahi ʻōpala ma hope o ka ʻike ʻana o ka lā); nā ʻeha o ka waha a i ʻole ka ihu; arthritis o na ami lehulehu; serositis: (ka wela o ka uhi a puni ka māmā a i ʻole ka puʻuwai); ka maʻi maʻi i hōʻike ʻia e ka protein a i ʻole ke kiola ʻana i ka mimi; nā maʻi neurological e like me ka hopu a me ka psychosis; a me nā maʻi koko e like me ka anemia hemolytic, leukopenia, a me ka lymphopenia. ʻO nā hōʻailona ʻē aʻe i maʻa mau akā ʻaʻole i hoʻokomo ʻia i loko o nā pae hoʻohālikelike, ʻo ia ka lauoho a i ʻole ka haki ʻana, ʻoi aku ka nui ma ka lae, a me Raynaud’s Phenomenon, kahi hoʻololi ʻelua a ʻekolu paha kala o nā manamana lima i ke anuanu. ʻOiai ʻaʻohe mea hōʻailona e hōʻoia i ka loaʻa ʻana o ka lupus, hiki ke hoʻohana ʻia kekahi mau loea lapaʻau e hōʻemi i ka maʻi maʻi. No ka laʻana, ʻo ka hoʻāʻo ʻana no nā antibodies antinuclear (ANAs) i loko o ke koko ka mea hana mua e hoʻohana ai ke kauka. ʻAʻole manaʻo ka hoʻāʻo ANA maikaʻi he lupus kekahi; ʻoiaʻiʻo, hoʻokahi o nā wahine maʻamau he ANA maikaʻi. Eia naʻe, ʻo ka hoʻāʻo ANA maikaʻi ʻole e hōʻemi nui i ka kānalua.

Nā kuhikuhi maʻi

Loaʻa nā pae hoʻohālikelike ʻē aʻe, i ʻike ʻia ʻo nā helu hana maʻi, no ka nānā ʻana i ka lupus. Hāʻawi kēia mau palapala i ke kauka e nānā ana i ka mea maʻi e nānā i ka hoʻomaikaʻi a i ʻole ka piʻi ʻana o ka maʻi. Aia kēia mau ʻano i ka BILAG (British Isles Lupus Assessment Group Index), SLEDAI (Systemic Lupus Erythematosus Disease Activity Index), SLAM (Systemic Lupus Activity Measure), ECLAM (European Consensus Lupus Activity Measurement), a me ka Lupus Activity Index (LAI). I kekahi manawa ʻaʻole e hōʻike ʻia kēia mau hōʻailona o ka lupus, ʻoiai ke kaumaha ka mea maʻi. ʻO kēia no ka mea ʻaʻole ʻike ʻia kekahi o nā pilikia i loaʻa i ka lupus, e like me ka luhi mau a me ka ʻeha. Akā, hōʻike kēia mau hōʻailona i kahi pilikia pili i kapa ʻia ʻo fibromyalgia.

Nā kūlana like ʻē aʻe

No ka mea e like ana nā maʻi a me nā kūlana ʻē aʻe me ka lupus, hiki i ka pili ʻana i ka hoʻokaʻawale ʻana ke kōkua nui i kahi hōʻailona pololei. Eia naʻe, ʻo ka nele o ʻehā o kēia mau pae hoʻohālike, ʻaʻole ia e kāpae i ka hiki ʻana o ka lupus. Ke hana ke kauka i ka hōʻailona o SLE, pono ʻo ia e hoʻokaʻawale i ka hiki ke loaʻa nā maʻi me nā hōʻailona like, e like me ka rheumatoid arthritis, systemic sclerosis (scleroderma), vasculitis, dermatomyositis a me ka arthritis i hoʻokumu ʻia e ka lāʻau a i ʻole ka maʻi.

Nā kumu

Salmon, Jane E., a me Robert P. Kimberly. “Lupus Erythematosus Pūnaehana.” ʻO ka Halemai no ka ʻOpa Hoʻomaʻamaʻa Kūikawā o ka Rheumatology a me nā maʻi Orthopedic Outpatient: ʻIke a me ka lāʻau lapaʻau . 5th ed. Philadelphia: Lippincott Williams & Wilkins, 2006. 221-38.
Schur, Peter H. “General Symptomology.” ʻO ka hoʻokele kino o Systemic Lupus Erythematosus . Ed. Peter H. Schur. 2nd ed. Philadelphia: Lippincott-Raven, 1996. 9-16.
Wallace, Daniel J. Ka Buke Lupus: He alakaʻi no nā maʻi a me ko lākou ʻohana. 3 ^ed ed. Nuioka: Oxford University Press, 2005. 259.

E kamaʻilio me kāu kauka inā loaʻa iā ʻoe nā hōʻailona lupus. ʻO Lupus kahi maʻi maʻi mau loa me ka lāʻau ʻole. ʻO ia ke ʻano hiki iā ʻoe ke mālama me ka mālama ʻana, akā ʻaʻole ia e hele. Hiki i ka lapaʻau ke kōkua i ka hoʻomaikaʻi ʻana i kāu mau hōʻailona, ka pale ʻana i ke ahi, a me ka pale ʻana i nā pilikia olakino ʻē aʻe i hana pinepine ʻia e ka lupus. E pili ana kāu mālama ʻana i kāu mau hōʻailona a me nā pono.

Pehea e ʻike ʻia ai ka lupus?

Hiki ke paʻakikī ke ʻike ʻia ʻo Lupus no ka mea he nui nā hōʻailona i kuhihewa pinepine ʻia no nā hōʻailona o nā maʻi ʻē aʻe. Nui ka poʻe i loaʻa i ka lupus no kekahi manawa ma mua o ka ʻike ʻana ua loaʻa iā lākou. Inā loaʻa iā ʻoe nā hōʻailona o ka lupus, e haʻi koke i kāu kauka. Wahine i hōʻoluʻolu ʻia e kāna kauka ʻAʻohe hōʻike hoʻokahi e ʻike inā he lupus ke kanaka. Akā hiki i kāu kauka ke ʻike inā he lupus ʻoe ma nā ʻano ʻē aʻe, e like me:

Moʻolelo lapaʻau. E haʻi i kāu kauka e pili ana i kāu mau hōʻailona a me nā pilikia ʻē aʻe. E mālama i kāu mau hōʻailona ma ke kākau ʻana iā lākou i ka wā e hiki mai ai. Eia kekahi, e nānā i ka lōʻihi o ka lōʻihi.
Moʻolelo ʻohana o ka lupus a i ʻole nā maʻi autoimmune ʻē aʻe. E haʻi i kāu kauka inā holo ka lupus a i ʻole nā maʻi autoimmune ʻē aʻe i loko o kou ʻohana.
Ka hoʻokolokolo kino piha. E ʻimi ana kāu kauka i nā ʻūhū a me nā hōʻailona ʻē aʻe i hewa kekahi mea.
Hoʻāʻo koko a me ka mimi. Hiki i ka ho’āʻo antinuclear antibody (ANA) ke hōʻike inā hiki i kāu ʻōnaehana pale ke hana i nā autoantibodies o lupus. ʻO ka hapa nui o nā kānaka me ka lupus hōʻoia maikaʻi no ANA. Akā, ʻaʻole manaʻo ka ANA maikaʻi he lupus kou. Inā ho’āʻo maikaʻi ʻoe no ANA, e kauoha paha kāu kauka i nā hoʻokolohua hou aʻe no nā antibodies e pili ana i ka systemic lupus erythematosus (SLE).
Biopsy ʻili a ʻili paha. ʻO ka biopsy kahi ʻoki liʻiliʻi e wehe i kahi laʻana o ka ʻiʻo. A laila nānā ʻia ka ʻiʻo ma lalo o kahi microscope. ʻO ka ʻili a me ka ʻiʻo puʻupaʻa i nānā ʻia ma kēia ala hiki ke hōʻike i nā hōʻailona o kahi maʻi autoimmune.

Hiki i kāu kauka ke ho’ohana i kēia mau ho’ā’o a pau e hana i kāu hō’ailona. Hiki iā lākou ke kōkua i kāu kauka e kāpae i nā maʻi ʻē aʻe i hiki ke huikau me ka lupus.

Pehea e mālama ʻia ai ka lupus?

ʻAʻohe lāʻau no ka lupus akā hiki i nā lāʻau lapaʻau ke kōkua iā ʻoe e hōʻoluʻolu a hoʻomaikaʻi i kāu mau hōʻailona. E pili ana kāu mālama ʻana i kāu mau hōʻailona a me nā pono. ʻO nā pahuhopu o ka lāʻau lapaʻau e:

Kāohi i ke ahi
E mālama i nā hōʻailona ke hiki mai
E hōʻemi i ka pōʻino o ke kino a me nā pilikia ʻē aʻe

Hiki i kāu lapaʻau ke komo i nā lāʻau lapaʻau no:

E hoemi i ka pehu a me ka eha
E hoʻomaha i kāu ʻōnaehana pale i mea e pale aku ai i ka hoʻouka ʻana i nā kino a me nā ʻiʻo i loko o kou kino
E hoemi a pale aku i ka poino o na hono
E hoemi a pale paha i ka poino kino

He aha nā ʻano lāʻau lapaʻau e mālama ai i ka lupus?

Nui nā ʻano lāʻau lapaʻau e mālama i ka lupus. Hiki i kāu mau kauka a me nā kahu hānai ke hoʻololi i ka lāʻau a lākou e kuhikuhi ai no kou lupus e like me ka loli ʻana o kāu mau hōʻailona a me kou pono. ʻO nā ʻano lāʻau lapaʻau i hoʻohana mau ʻia e mālama i ka lupus:

Nā lāʻau anti-inflammatory nonsteroidal (NSAIDs) . ʻO nā NSAID ma luna o ke kūʻai aku, e like me ka ibuprofen a me ka naproxen, e kōkua i ka hōʻemi ʻana i ka ʻeha ʻeha a me ka pehu ʻana o nā hono a me nā ʻiʻo.
ʻO nā corticosteroids . Hiki i nā corticosteroids (prednisone) ke kōkua i ka hoʻohaʻahaʻa ʻana i ka pehu, ka palupalu, a me ka ʻeha. I nā kiʻekiʻe kiʻekiʻe, hiki iā lākou ke hoʻomaha i ka ʻōnaehana pale. ʻO nā corticosteroids, i kapa ʻia i kekahi manawa he “steroids,” hele mai i nā ʻano like ʻole: nā pila, kahi pana, a i ʻole ka ʻaila e hoʻopili ai i ka ʻili. ʻO nā hōʻailona Lupus e pane wikiwiki loa i kēia mau lāʻau ikaika. Ke hana ʻia kēia, e hoʻohaʻahaʻa mālie kāu kauka a hiki i ka wā ʻaʻole pono ʻoe. ʻO ka lōʻihi o ka hoʻohana ʻana o ke kanaka i kēia mau lāʻau lapaʻau, ʻoi aku ka paʻakikī o ka hoʻohaʻahaʻa ʻana i ka nui. Hiki ke hoʻopōʻino i kou kino ke hoʻōki koke i kēia lāʻau.

E kamaʻilio me kāu kauka:

E pili ana i nā hopena ʻaoʻao āu e loaʻa ai
Inā ʻaʻole kōkua hou kāu mau lāʻau i kāu hōʻailona
Inā loaʻa iā ʻoe nā hōʻailona hou
Inā makemake ʻoe e hāpai
E pili ana i nā huaora a i ʻole nā mea hoʻohui lāʻau āu e lawe ai – ʻaʻole hiki ke hui maikaʻi me nā lāʻau lapaʻau āu e hoʻohana ai e mālama i ka lupus

Hiki iaʻu ke mālama i kaʻu lupus me nā lāʻau lapaʻau ʻē aʻe?

ʻO kekahi poʻe me ka lupus e hoʻāʻo i ka ʻaila, ka ʻaila, ka ʻaila iʻa, a i ʻole nā mea hoʻohui i hiki iā lākou ke kūʻai me ka ʻole o ke kau ʻana. Hoʻāʻo kekahi poʻe i ka homeopathy a ʻike paha i kahi chiropractor e mālama i ko lākou lupus. ʻO kekahi poʻe me ka lupus e hoʻāʻo nei i kēia mau ʻano lapaʻau e ʻōlelo nei he kōkua lākou. ʻAʻole i hōʻike ʻia nā haʻawina noiʻi i nā pōmaikaʻi o kēia mau ʻano lapaʻau. A ʻaʻole i hana ʻia nā noiʻi noiʻi e ʻike inā hōʻeha kēia mau lāʻau i ka poʻe me ka lupus. E kamaʻilio me kāu kauka a kahu hānai paha ma mua o ka hoʻāʻo ʻana i kekahi lāʻau lapaʻau ʻē aʻe. Eia kekahi, mai ho’ōki a hoʻololi paha i kāu lāʻau i kauoha ʻia me ka ʻole e kamaʻilio mua me kāu kauka a kahu hānai paha.

Pono au e ʻike i ke kauka kūikawā no kaʻu lupus?

Malia paha. E hoʻomaka me ka ʻike ʻana i kāu kauka ʻohana a me kahi rheumatologist, he kauka loea i nā maʻi o nā hono a me nā ʻiʻo e like me ka lupus. Ma muli o kāu mau hōʻailona a i ʻole ua ʻeha kou mau kino e kou lupus, pono paha ʻoe e ʻike i nā ʻano kauka ʻē aʻe. Hiki i kēia mau mea ke hoʻopili i nā nephrologists, nāna e mālama i nā pilikia o ka puʻupaʻa, a me nā immunologists lapaʻau, nāna e mālama i nā maʻi ʻōnaehana pale.

Hiki iaʻu ke make i ka lupus?

ʻAe, hiki i ka lupus ke make. Akā, mahalo i nā lāʻau lapaʻau hou a ʻoi aku ka maikaʻi, hiki i ka hapa nui o ka poʻe me ka lupus ke manaʻo e ola lōʻihi a olakino. ʻO nā kumu nui o ka make i ka poʻe me ka lupus he mau pilikia olakino e pili ana i ka lupus, e like me ka maʻi kīkī, nā maʻi, a me ka maʻi puʻuwai. ^1,2 E hana pū me kāu kauka e mālama i ka lupus. E lawe i kāu lāʻau lapaʻau e like me ka ʻōlelo a kāu kauka iā ʻoe a hana i nā koho olakino, e like me ka puhi ʻole ʻana, ka ʻai ʻana i nā meaʻai olakino, ka hoʻoikaika kino maʻamau, a me ka mālama ʻana i kou kaumaha. E aʻo hou e pili ana i ka mālama ʻana iā Lupus.

He aha ka noiʻi e hana nei ma luna o lupus?

Ke nānā aku nei ka noiʻi Lupus i:

ʻO nā genes e pāʻani i ka lupus a me ka ʻōnaehana immune
Nā ala e hoʻololi ai i ka ʻōnaehana pale i ka poʻe me ka lupus
Nā hōʻailona like ʻole a me nā hopena o ka lupus ma nā ʻano lāhui like ʻole
Nā mea i loko o ke kaiapuni e hoʻoulu ai i ka lupus
ʻO ke kuleana o nā hormones i ka lupus
Hoʻohana ʻia nā lāʻau lapaʻau a me ka hormone therapy i nā wahine me ka lupus
ʻO ka maʻi puʻuwai i ka poʻe me ka lupus
ʻO nā kumu o ka pōʻino o ka ʻōnaehana nerve i ka poʻe me ka lupus
Nā lāʻau lapaʻau no ka lupus
ʻO nā lāʻau lapaʻau no ka pōʻino o ke kino i hoʻokumu ʻia e ka lupus, me ka hoʻololi ʻana i ke ʻano o ke kino
E ʻike i ka nui o ka poʻe i loaʻa i ka lupus ma ʻAmelika Hui Pū ʻIa

E aʻo hou e pili ana i nā noiʻi noiʻi e pili ana i ka lupus.

Ua pane mākou i kāu nīnau e pili ana i ka maʻi lupus a me ka mālama ʻana?

No ka ʻike hou aku e pili ana i ka maʻi lupus a i ʻole ka mālama ʻana, e nānā i kēia mau kumuwaiwai:

Antinuclear Antibodies (ANA) – ʻIke mai ka American College of Rheumatology
Ka ʻike ʻana i ka lupus — ʻIke mai ka Lupus Foundation of America
Ka mālama ʻana i ka lupus — ʻIke mai ka Lupus Foundation of America

* Hāʻawi ʻia ka ʻike ma kēia ʻaoʻao e ke Office on Women’s Health